The Union Ministry of Health and Family Welfare have published a national policy for treatment of rare diseases, listing 450 diseases as rare but not providing a detailed roadmap on treatment.
About the Policy:
The latest policy creates three categories of rare diseases
The policy states that the Centre will provide assistance of Rs 15 lakh to patients suffering from rare diseases that require one-time curative treatment under the Rashtriya Arogya Nidhi scheme. The treatment is limited to beneficiaries of Pradhan Mantri Jan Arogya Yojana. Some diseases in this category are osteopetrosis, immune deficiency disorders and Lysosomal Storage Disorders.
About the Rare Diseases
The various committees appointed by the government to make recommendations for framing a policy on rare diseases.
Rashtriya Arogya Nidhi scheme
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